Patient-Reported Outcome Assessments:
Spotlight on the QOL General (QGEN®)
1-Minute Alternative to SF-36
September 30, 2020 9AM ET
In this webinar, Dr.John Ware, developer of the SF-36, explains how the new 1-minute QGEN survey was developed and evaluated as a more efficient alternative to common SF-36, PROMIS and other measures and how it was normed in a U.S probability sample of adults in 2020. Findings show that, while maintaining equivalent validity and average scores for common general QOL domains, QGEN items increase the range of measurement enough to reduce ceiling effects for the dual purposes of monitoring group outcomes and screening for individual levels of functional health and well-being requiring more measurement.
Dr. John E. Ware is an internationally recognized expert in patient-reported outcomes (PROs) and an elected member of the National Academy of Medicine . He led the development of outcome measures used in the RAND Health Insurance Experiment, served as the principal investigator for the Medical Outcomes Study where he developed the SF-36® Health Survey and launched and led International Quality of Life Assessment Project translations of the SF-36 for use in multinational clinical trials and population health surveys. His current focus is on more practical and integrated general and disease-specific PROs.
Marie-Pierre Emery has been working in the field of Patient-Reported Outcomes (PRO) and Clinical Outcome Assessments (COA) within the non-profit Mapi Research Trust for over 25 years. Marie-Pierre has developed and contributed to the success of all PRO and COA information activities at Mapi Research Trust, including the creation of online databases of PRO and COA instruments (PROQOLID), of PRO and COA claims granted by Health Authorities in the US and Europe (PROLABELS), PRO and COA information searches and targeted literature reviews, and the management and international distribution of over 500 PROs and COAs and their derivatives such as translations and electronic versions, on behalf of their authors and copyright holders.
By joining this webinar attendees will:
Observe historical trends in the content and scoring of widely used PRO measures
Become familiar with the approaches used to improve QGEN items to increase efficiency and reduce ceiling effects
Understand how QGEN content and metrics were standardized to enable comparisons with results from longer legacy measures
Become informed about practical aspects of QGEN dissemination by Mapi Research Trust for scholarly and commercial purposes https://eprovide.mapi-trust.org/